The shocking murder of UnitedHealthcare CEO Brian Thompson opened the floodgates of people sharing how health insurance companies’ denials have devastated their lives.
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Most of us have heard stories of callous and capricious decisions by health insurance providers. I didn’t realize how common and cruel these denials can be until this past week.
I asked a Facebook group of moms if any of them could share a personal experience with a health insurance claim. I was taken aback by the outpouring of responses.
Ashley Berhorst, 43, of Wentzville, Missouri, was diagnosed with an aggressive form of breast cancer in February. She underwent 16 rounds of chemotherapy, followed by a tougher type of chemo known as the “red devil” for its often-vicious side effects.
UHC denied her a shot, Neulasta, that is commonly administered during chemo to protect from infection. Her oncologist was stunned. After all, a fever is a potentially deadly situation for a cancer patient with a port. After going back and forth between the doctor’s office and a peer-to-peer review board, UHC still denied the shot.
The next week, Berhorst ended up in the ER with a fever and low white blood cell count.
“It put me in a very vulnerable position that I shouldn’t have been put in,” she said. “They don’t care if I die. But my kids do. And my family does.”
UHC finally approved the shot after Berhorst's hospitalization. She survived that close call, but how many others aren’t so lucky?
Jennifer Grotpeter, 57, splits her time between Webster Groves, Missouri, and Lawrence, Kansas. While driving on the highway in May, her vision turned into a kaleidoscope. She made her way over to the shoulder, hitting the guardrail.
“It was terrifying,” she said.
Based on her symptoms, her doctor suggested she see a specialist for POTS, a blood circulation disorder. The specialist in St. Louis was not accepting new patients, so she found a POTS clinic at the University of Kansas Medical Center -- only to learn that Anthem Blue Cross Blue Shield would not cover treatment.
Grotpeter, who is retired, spent hours on the phone every day for a week with her insurance company. She waited on hold for hours at a time. Her doctor filled out all the necessary paperwork. She sent reams of faxes of her medical records. Of all the people she eventually spoke to on the phone, no two ever told her the same thing.
She asked one representative: “How do people who are not retired do this? Do you just let them be sick?”
When a representative told her to call back the next day, Grotpeter ran out of patience.
“I would rather let this condition kill me than ever call the number on the back of that card again,” she said. She switched to an insurance provider that cost her twice as much, but covered her care.
Her biggest issue with her POTS is low blood pressure, which can cause a medical emergency while driving.
“Maybe Anthem was trying to cure me by having their total s--- ‘customer service’ shoot my blood pressure through the roof,” she said sarcastically.
Laura Pogue, 42, of O’Fallon, Missouri, had a badly needed surgery in 2017 to repair a severe diastasis recti and an umbilical hernia. After giving birth, the fascia that encased her abdomen were shredded. Her abdominal muscles separated so far that she could feel her own intestines. It also caused terrible back pain.
After several meetings between her doctors and Blue Cross Blue Shield, her insurance provider said the surgeries would be covered. But after surgery, they denied the claims because of how the surgeon described the procedure in a report.
“It was not considered a complete repair of the hernia,” she said.
Pogue appealed the decision. It was denied. Her only option was to hire a lawyer, which she didn’t have the money to do. She fought the insurance company for a total of two years.
“Even when you do your homework and do all the things (they) tell you to do ... I jumped through all of their hoops, and I did everything right,” she said. She was still stuck with a $10,000 bill that took four years to pay off.
“So many people don’t realize this can happen to you,” she said.
These nightmare scenarios of near death and financial ruin should serve as a wakeup call for legislators, the insurance industry and all of us who put our health in their hands.